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Dear Governor Ned Lamont, Advocacy Request for Brain Injury Survivors





Advocacy Request for Brain Injury Survivors in Connecticut. April 2023



I hope this letter finds you in good health and high spirits. I am writing to respectfully request your advocacy support regarding a pressing issue that is impacting individuals and families living with brain injuries in Connecticut who rely on federally funded programs. Specifically, individuals using federally funded programs such as the Money Follows the Person (MFP) Program and the Acquired Brain Injury (ABI) Waiver Program may be facing limited access to available services due to what may appear to be covert referral practices by Connecticut contracted care management agencies. This issue significantly reduces the full access of thousands of disabled Medicaid consumers of federally funded services.


As an organization dedicated to promoting full equal access to care for people with disabilities, I am reaching out to request your assistance in investigating this matter and guiding appropriate actions to ensure that people with disabilities receive the necessary resources and services. The negative impact of limited access to care for brain injury survivors is significant and cannot be ignored, potentially resulting in delayed recovery, increased health risks, reduced quality of life, financial burden, and mental health consequences.

Furthermore, I would like to express concerns regarding how this situation may negatively impact federal funding and increase healthcare expenses. Limited access to necessary care could not only place an additional financial strain on Connecticut and its citizens but also jeopardize the state's ability to secure much-needed federal support for these programs in the future.


It is widely acknowledged that care managers play a crucial role in providing high-quality care to consumers with disabilities. However, recent evidence suggests that the current workload faced by care managers far exceeds what is necessary for consumers' health and well-being. This puts an enormous strain on care managers, who may be responsible for as many as 40 consumers at a time, making it increasingly challenging to provide ethical, professional care that is person-centered and in line with the rights of disabled people.


Care managers are essential professionals who work tirelessly to ensure that consumers receive the care and support they need to live fulfilling lives. However, when their workload is too heavy, the quality of care they can provide suffers, leading to ethical concerns and potential neglect of consumers' needs.


It is essential to acknowledge the challenges faced by care managers and to take steps to alleviate their workload. By reducing the number of consumers assigned to each care manager, we can ensure that the care provided is of the highest quality and aligns with the principles of person-centered care and the rights of disabled people. This will also benefit care managers, who will be better able to manage their workload and provide the care they are trained to provide.


Therefore, I respectfully request that you use your influence to address this issue and ensure care management transparency and accessibility to the practices of federally funded referrals.


Would you please ensure individuals with disabilities have full access to all available resources and services they are entitled to?


Your advocacy on this matter would make a significant difference in addressing this issue in a fair and unbiased manner.


Thank you for your unwavering commitment to protecting the rights of individuals with disabilities.

Your continued efforts to promote equality and access to necessary resources and services are invaluable.


Sincerely,

David Medeiros


______________________

Governor Ned Lamont, advocacy support, brain injuries, Connecticut, federally funded programs, Money Follows the Person Program, Acquired Brain Injury Waiver Program, care management agencies, Medicaid consumers, disability access, care transparency, investigation, delayed recovery, health risks, quality of life, financial burden, mental health consequences, federal funding, health care expenses, care management transparency, resources, services, equality, disability rights


Governor Ned Lamont, advocacy support, brain injuries, Connecticut, federally funded programs, Money Follows the Person Program, Acquired Brain Injury Waiver Program, care management agencies, Medicaid consumers, disability access, care transparency, investigation, delayed recovery, health risks, quality of life, financial burden, mental health consequences, federal funding, health care expenses, care management transparency, resources, services, equality, disability rights


 

Reference: OPM ID # 24-85 A-2025-00307 FCC-FOIA-2025-000358-A FIC 2024-0683 R000748-102524 2025-F-01035 R000354-102024 R000737-102024 AD2414036 A-2025-00351 2025-00027-A-PHS A-2025-00395 2025-00434-FOIA-OS A-2025-00393 OPM ID # 24-83 A-2025-00393 2025-00446-FOIA-PHS A-2025-00399 A-2025-00392 25-00142-FOIA PRI-25-023 2025-00032-A-PHS 110620247022 24-86 AD2414644 R000770-110424 2025-F-01651 A-2025-00467 A-2025-00401 2025-00481-FOIA-PHS 112020247009 112020247039 2025-00024-A-OS A-2025-00420 25-00044-F A-2025-00069 A-2025-00469 OPM ID# 24-88 & 89 2025-00638-FOIA-OS AP-2025-001 FOIA-2025-00562 FOIA-2025-00563 EMRUFOIA111524 F-2025-03523 2025-00574-FOIA-PHS 145-FOI-21320 OPM ID #24-94 25-OIG-177 FOIA-2025-01054 FOIA-2025-01052 EMRUFOIA120324-7 FOIA-2025-01053 OPM ID #24-95 FOIA-2025-01056 EMRUFOIA120324-7 FOIA-2025-01055 FOIA-2025-01057 R005487-120324 2025-01079-FOIA-PHS 2025-01078-FOIA-PHS FOIA-2025-056 PRI-25-045 FOIA-2025-01060 FOIA-2025-01059 FOIA-2025-060 FOIA-2025-01203 EMRUFOIA121324 #FOIA-2025-063 11034 6779 7959 17303 17304 3033 5282 14733 6577 10 10527 3519 28368 8560 63 3814 4923 4126 6612 4809 4850 35673 74 239 4850 3519 166 10661 14578 239 3033 4923 166 4850 6779 14733 3519 166 4850 10661 14578 3033 4923 166 6779 4850 166 3519 152 4121 10661 74 3033 239 5282 4850 14733 4923 4850 6612 4923 10672 63 6959 115 35673 10661 239 74 6779 3033 239 4923 166 3519 3033 14578 35673 166 4297 14 3519 5123 287 35673 14 59 3519 287 14733 4809 23077 4923 74 4735 4850 2667 3519 796 59 166 856 22238 35673 14 10835 3033 239 4297 3519 14733 796 3519 856 35673 22005 5123 59 4923 3033 239 14733 166 4297 3519 35673 5123 59 3124 14578 7683 74 10661 3033 239 7982 14587 2667 4121 287 129 11109 856 3519 59 2667 35673 22238 2667 11034: Commission on Fiscal Stability and Economic Growth 6779: Connecticut Commission on Human Rights and Opportunities 7959: Senate Office of Public Records 17303: Republican State Central Committee Of Connecticut 17304: Connecticut House Of Representatives 3033: Centers for Medicare and Medicaid Services 5282: Office of the State Comptroller 14733: Office Of Policy And Management 6577: Office of State Ethics 10: Federal Bureau of Investigation 10527: Federal Communications Commission Office of the Inspector General 3519: Department of Justice, Civil Rights Division 28368: Department Of Labor 8560: Department of Public Health - Medical Examining Board 63: Department of Labor 3814: Department of Consumer Protection 4923: Department of Social Services 4126: Department of Economic and Community Development 6612: Department of Public Health 4809: Office of the Governor 4850: Office of the Attorney General - Connecticut 35673: Department Of Justice 74: Department of Health and Human Services 239: Department of Health and Human Services, Centers for Medicare & Medicaid Services 166: Department of Justice, Disability Rights Division 10661: Department of Health and Human Services Office of Inspector General 14578: Department Of Health And Human Services, Office For Civil Rights 152: Centers for Disease Control and Prevention 4121: Government Accountability Office 10672: Department of Labor, Wage and Hour Division 6959: Department of Justice, Office of Justice Programs 115: Department of Justice, Criminal Division 4297: Department of Justice, Civil Division 14: U.S. Department of State 5123: Director, Office of Information Policy 287: Office of Government Information Services 59: Department of Justice, Office of Information Policy 23077: CT Freedom Of Information Agency 4735: Department of State, Office of the Inspector General 2667: Office of Special Counsel 796: Department of Justice, Office of the Inspector General 856: Department of Justice, Office of the Attorney General 22238: U.S. Department Of Justice 10835: Department of Health and Human Services 22005: Department Of Justice Office Of Administration 3124: Department of Health 7683: U.S. Department of Health and Human Services, Health Resources and Services Administration 7982: Office of Special Counsel, Office of General Counsel [APPEALS] 14587: Office Of The Special Counsel Of Robert Mueller 129: National Archives and Records Administration 11109: Office of the Attorney General for the District of Columbia OPM FCC FIC DOJ DOL DSS CMS HHS CDC GAO OSC OIG PHS DPH CHRO FOIA FOIC

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